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Showing posts with label Scoliosis. Show all posts
Showing posts with label Scoliosis. Show all posts

Monday, 20 June 2016

International Scoliosis Awareness Day 2016



Scoliosis is a disorder with abnormal sideways or lateral curvature of the spine. It is not a rare condition but there is still very little knowledge or understanding about scoliosis and how it affects the lives of patients and their families, which can leave them feeling isolated and unsure where to turn.

Many of you may not know that Jamaican sprinter and gold medalist Usain Bolt has scoliosis. In an interview Bolt described how scoliosis affected his training in the early part of his career:
When I was younger it wasn’t really a problem. But you grow and it gets worse. My spine’s really curved bad [makes “S” shape with finger]. But if I keep my core and back strong, the scoliosis doesn’t really bother me. So I don’t have to worry about it as long as I work hard. The early part of my career, when we didn’t really know much about it, it really hampered me because I got injured every year.”

In 2013 Scoliosis Association (UK) launched International Scoliosis Awareness Day. The aim was to unite people from all over the world to create positive public awareness of scoliosis, promote education, and bring together those affected by the condition.





National Scoliosis Awareness Month takes place yearly in June with the goal of highlighting the growing need for education, early detection and awareness to the public about scoliosis and its prevalence within the community.

ISAD 2016 is on Saturday 25th June 2016. Show your support and get involved in this year's very special Got Your Back campaign!  To find out how you can help visit www.sauk.org.uk 


Follow SAUK on twitter @ScoliosisUK     #scoliosisgotyourback

Got your Back Mug £5 GBP available from www.sauk.org.uk/shop/shop-online







Thursday, 19 June 2014

Celebrities with scoliosis





Scoliosis (/ˌskɒlɪˈoʊsɪs/;from Ancient Greek: σκολίωσις skoliosis “obliquity, bending”) is a medical condition in which a person's spine is curved from side to side. Although it is a complex three-dimensional deformity, on an X-ray, viewed from the rear, the spine of an individual with scoliosis can resemble an "S" or a "?", rather than a straight line.

Scoliosis is typically classified as either congenital (caused by vertebral anomalies present at birth), idiopathic (cause unknown, sub-classified as infantile, juvenile, adolescent, or adult, according to when onset occurred), or secondary to a primary condition.

Secondary scoliosis can be the result of a neuromuscular condition (e.g., spina bifida, cerebral palsy, spinal muscular atrophy, or physical trauma) or syndromes such as Chiari malformation. 
(From various sources cited on Wikipedia, the free encyclopedia)


Recent longitudinal studies reveal that the most common form of the condition, late-onset idiopathic scoliosis, is physiologically harmless and self-limiting even without treatment. The rarer forms of scoliosis pose risks of complications.

A diagnosis of scoliosis can be scary and people can worry that living a normal life may not be possible. 


However, there are a number of people with scoliosis in the public eye who force the impact of their scoliosis into the shadow of their achievements and careers. It’s truly inspirational stuff! So here are a few famous names who have been affected by scoliosis.

Sports men and women

One of the biggest myths surrounding scoliosis is that it prevents people continuing with the sports that they love. 

Usain Bolt
Usain Bolt, ‘the fastest man alive’, has smashed that myths credibility, along with obtaining his three world records for the 100 metres, 200 meters and 4x100meter relay. Bolt was born with congenital scoliosis and initially had a small curve in his lower spine. However, in an interview with ESPN, he reported that it has progressed to a significant ‘S’ curve which caused him discomfort during adolescence. He was able to manage his condition by keeping his core and back muscles strong (and what a back it is!) We look forward to seeing if he can defend his Olympic titles in Rio 2016! Go Bolt!

Jenny Thompson, former Olympic swimmer, didn’t let her diagnosis of scoliosis get in the way of  winning 12 Olympic medals, including 8 gold, during the course of her career. On the tennis scene, current World Number 110,James Blake has had a storming career, reaching the final of the 2006 Tennis Masters Cup, and the semi-finals of the Beijing Olympics.

Other well known sports professionals with scoliosis include Olympic swimmersJanet EvansJon Oslon and golfers Stacy Lewis and Dudley Hart. These sports professionals are international inspirations and living reminder that anything is possible!
Actresses and Models

Sadly scoliosis can lead to body image issues and a lack of confidence. Despite acknowledging her own scoliosis insecurities, actress, model, 90’s ‘it girl’, and socialite Chloe Sevigny has built a multi-faceted career appearing in many successful independent films, TV series’ and even appearing on the front cover of Elle magazine.

Chloe Sevigny

Sarah Michelle Geller has also spoken publicly about living with scoliosis
An equally sassy twisted sister is actress Sarah Michelle Geller, most famous for playing Buffy in Buffy the Vampire Slayer. Now retired from her vampire slaying days, Sarah relieves discomfort caused by scoliosis by doing Pilates. Actress and former model Rebecca Romijn is best known for her role as Mystique from X-Men and Alexis Meade from Ugly Betty

A scoliosis diagnosis is something that she has in common with fellow Ugly Betty co-star Vanessa Williams who plays Wilhelmina Slater.

Vanessa Williams

The Queen of Hollywood, actress, singer dancer Liza Minnelli is a true scoliosis survivor. Despite having two false hips, a wired-up knee and three crushed disks on top of her scoliosis, she still manages to dance every day. If that’s not inspiration to dance, I don’t know what is!  Other glamorous superstars with scoliosis include Elizabeth TaylorRenee Russo, and Lisa Howard.

Liz Taylor suffered from Scoliosis

Musicians
Some of the biggest names in rock music history had a scoliosis diagnosis.

Kurt Cobain

Kurt Cobain, lead singer, guitarist, and primary songwriter of the band Nirvana suffered from back pain due to scoliosis all his life. Despite frequently experiencing pain due to the weight of his guitar he was able to channel it through his music.

Continuing on a rock tip, John Lydon, lead singer of punk rock band the Sex Pistols, had a hunched back due to his scoliosis. However that didn’t stop him from playing at sold out gigs and touring the world.

Jeffery Tate spent a good deal of his childhood in hospitals and wheelchairs. Not only did he decide to repay modern medicine for teaching him to walk by becoming a doctor, but he also became a fantastic British conductor. Tate’s international conducting career started with the Metropolitan Opera in New York. He has since been appointed as principle conductor of the Royal Opera House, music director of the San Carlo Theatre of Naples and chief conductor of the Hamburg Symphony Orchestra.
Melanie Blatt from girl group All Saints, had fairly severe scoliosis requiring surgery. The three metal pins down her spine didn’t stop her from dancing on stage with her fellow band mates.

Royalty
Scoliosis even has royal representation. When millions around the world tuned in to the royal wedding in 2011, the only unusual thing they would have noticed about Princess Eugenie was her hat. 

The princess was raising money for the Royal national Orthopaedic Hospital and the Marylebone Cricket Club
Princess Eugenie is a patron of the  Royal National Orthopaedic
Hospital where she had surgery at the age of 12 to correct her scoliosis

In fact, Princess Eugenie, who is 6th in line to the throne, had an operation in 2002 to correct her scoliosis. She has since graced the front cover of Tatler magazine and attended university in Newcastle.

Source: http://www.sauk.org.uk/ 

Visit the SAUK website to read more about scoliosis and find out how you can help them continue to provide support and advice to people with scoliosis.

Sunday, 18 May 2014

International Scoliosis Awareness Day

Saturday 28th June, 2014 - Speak up for scoliosis!


On Saturday 29th June 2013, the first ever International Scoliosis Awareness Day (ISAD) was launched! Headed by SAUK (www.sauk.org.uk), people with scoliosis from around the world united to raise awareness and funds for curvature of the spine!  This was the first international scoliosis awareness day with the online community getting active, photos and stories being shared, and events going on around the country.
The next one will be on Saturday 28th June 2014 and, with your help, ISAD can go from strength to strength!

Download your ISAD guide now!

Scoliosis is a relatively unknown condition and many people have never even heard of it.  The International Scoliosis Awareness Day is a great chance to create positive, public awareness about scoliosis, promote education, advocacy campaigns, and bring people together with the condition.  The day is an opportunity to shout about scoliosis, to help people understand what it is, and the impact that it can have on people’s lives.  We will be working very closely with the Scoliosis Research Society in the USA to bring people together from around the world to run events, feature in the press, and most importantly show off their curves while having lots of fun!
So, what are you doing on Saturday 28th June 2014?
Think BIG: why not run an event for the awareness day?  Hold a fete, have a party, host an awareness BBQ, head to your local park and have a picnic with blue scoliosis cupcakes, set up a stall in your local shopping centre, or set yourself a challenge! The options are endless!
Get media savvy: Why not approach your local newspaper or radio station with your story to see if they will feature you? It is a great opportunity to raise awareness of the condition and to tell people about the great work done by SAUK. Download the ISAD resources (coming soon) and send them to local media outlets - don't forget to tell them your story as they might feature you too!
Help us promote the day: change your Facebook profile picture to one of the special images, update your status to tell people about the day or use our twitter hashtag #ISAD14. The more people that know about it, the more people will get involved to raise awareness and funds for scoliosis!
Don’t just focus on one day: We don’t want a day to be a barrier for people getting involved, so if you want to choose another day close to the 28th that is absolutely fine!  Why not get your work or school involved on the Friday or the Monday?  You could have a dress down, or dress in blue day, or take cakes and biscuits in to sell to your colleagues or classmates!
Fundraise a variety of ways: use Virgin Money Giving for a convenient, user-friendly, and secure way to fundraise. Or use a sponsorship form for easy fundraising from your friends and family!
More information is contained in the ISAD fundraising guide, and we'll be keeping you updated with developments so check back regularly!
Have any questions or ideas? Get in touch!